Ethics of Engineering Life

Si tratta della prima conferenza internazionale sull’etica della vita (tecnologica) a cui vi hanno partecipato all’organizzazione la Pontificia Accademia per la Vita, il NCCR Molecular Systems Engineering (Università di Basilea), il Centro di ricerca ETH (Zurigo, Svizzera) e l’Ospedale Pediatrico Bambino Gesù di Roma.

EVENTO: 26 – 27 settembre 2022
Residenziale
Vaticano, Roma, presso Palazzo Pio, piazza Pia 3

OBIETTIVO: L’ingegneria dei sistemi molecolari e cellulari per applicazioni cliniche utilizza le competenze acquisite in tutto il mondo negli ultimi 10 anni. Procedure cliniche innovative e il ripristino delle funzioni corporee sono realizzati attraverso lo sviluppo di terapie geniche e cellulari. I tentativi riusciti includono il ripristino della vista, il controllo di disordini metabolici e la crescita di tessuti e organi in laboratorio (organoidi). A lungo termine tali approcci di ingegnerizzazione dei sistemi aiuteranno a curare meglio le patologie.

Ma i metodi per modificare, correggere e/o integrare il genoma dei pazienti potrebbero essere utilizzati anche per migliorare lo stile di vita di una persona, o pure per obiettivi discutibili e problematici. Per affrontare gli aspetti etici di tali tecnologie innovative, la Prima conferenza internazionale Ethics of Engineering Life, riunisce alcuni degli esperti interessati allo sviluppo degli approcci che consentono di modificare e controllare i sistemi viventi, i clinici che applicano tali procedure, esperti di etica, filosofi, comunicatori, artisti e altri rappresentanti della nostra società globale.

PROGRAMMA scaricabile qui

Monday, September 26
09:00 – 09:20 OPENING
–          Welcome, Renzo Pegoraro
–          Welcome note, Vincenzo Paglia, President PAL
–          Ethics and Engineering Life, introduction and overview, Ralf Stutzki
–          Engineering Molecular Systems, introduction and overview, Daniel Müller
09:20 – 10:10 ETHICS AND GENE-BASED ENGINEERING Chair: Renzo Pegoraro

–          Gene-editing: ethical and legal challenges, Laura Palazzani, Full professor at LUMSA (Roma), vice-president of the Italian National Bioethic Committee, member of EGE (European Group on Ethics in Science and New Technologies)
–          Gene-based therapy: delivering on the promise? Luk Vandenberghe, Harvard Medical School
10:40 – 11:30 ETHICS AND CELL-BASED ENGINEERING Chair: Daniel Müller

–          Engineering cellular systems: modify, repair, but not at all costs. Which ethical benchmarks? Marie-Jo Thiel, University of Strasbourg
–          Cell-based therapies of the future, Martin Fussenegger, ETH Zürich
11:30 – 12:20 ETHICS AND ORGANOID-BASED ENGINEERING Chair: Daniel Müller

–          Exploring the ethics of gastruloids, Nienke de Graef, Leiden University Medical Center
–          Stem cell-derived organoids model human disease, Hans Clevers, Roche Pharma
14:00 – 14:40 YOUNG RESEARCHERS’ SESSION part I Chair: Carlo Casalone

14:40 – 15:30 PANDEMIC – LESSONS LEARNED Chair: Ana Borovecki

–          Medicine changes fast. Medicine changes in the instant: healthcare professionals and COVID-19,Montserrat Esquerda Aresté, Ramon Llull University
–          COVID-19 and vaccines: what did we learn?,Emanuele Cozzi, University of Padua
15:45– 16:35  REGULATION & COMMUNICATION Chair: Alberto Tozzi

–          Engineering life and legal regulation: from principles to ex post evaluation, Federico de Montalvo Jääskeläinen, Comillas Pontifical University
–          The challenge of communicating bioengineering in a harsh debate,Marco Cattaneo,National Geographic
16:35 – 17:45.            RELIGIOUS VIEWS ON ENGINEERING LIFE PANEL Moderators: Renzo and Ralf
Emmanuel Agius, Christianity; University of Malta
Andrea Genazzani, Judaism; University of Pisa
Guido Giordano, Buddhism; Roma Tre University
Ilhan Ilkilic, Islam; Istanbul University
 
18:20 – 19:00 Engineering Life and Us – an ArtScI project, Michel Comte
 
Tuesday, September 27
09:15 – 10:30 ENGINEERING LIVING SYSTEMS AND BIOETHICAL PRINCIPLES Chair: Laura Palazzani
–          The conundrum of translational ethics – Engineering gaps between theories and practices,Henk ten Have, Duquesne University
–          Vision restoration, Botond Roska, Institute of Molecular and Clinical Ophthalmology Basel
–          Ethical implications of digital twins, Alberto E. Tozzi, Bambino Gesù Children’s Hospital
11:00 – 11:50 GLOBAL PERSPECTIVES Chair: Henk ten Have
–          Unity in diversity: how development of biotechnology can serve the needs of all,Kevin Fitzgerald, Creighton University
–          Global bioethics and the new possibilities for engineering life, Ana Borovecki, University of Zagreb
11:50 – 12:30 YOUNG SCIENTISTS’ SESSION part II Chair: Carlo Casalone

14:00 – 16:00 FOCUS PANEL Chairs: Kevin Fitzgerald and Ana Borovecki
–          GOVERNANCE
Ethical requirement for global governance and oversight of gene editing, Jacques Simpore, University of Ouagadougou
–          PATIENTS VIEW
User experiences without scientific basis
How do you deal with experiences that you have gained as a patient, caretaker or equipment supplier in daily practice without being supported by scientific research and evidence?, Jack Janssen, Dutsch Najjar Foundation
–          COMMUNICATION
The media’s role in education and equality of access to emerging medical technology,Jennifer Copestake, Vatican Bureau, Salt+Light Television
–          MEDICINE
Gene therapy: clinical perspective, Hendrik Scholl, Institute of Molecular and Clinical Ophthalmology Basel
–          Corporation
Opportunities and challenges in gene and cell therapy,Tim Hunt, Alliance for Regenerative Medicine
16:00              END OF ONLINE STREAMING DAY 2
16:30 – 18:30 ETHICS STATEMENT SESSION Round table

Wednesday, September 28
10:00 – 12:00 ATTENDANCE OF THE PUBLIC AUDIENCE OF THE POPE